What's Been Going On At Home

August 5th, 2008

Hi,
Just wanted to let ya'll know that my time at home has gone relatively well. I've had some rough patches, but the three narcotics I can take simultaneously seem to be doing their job. I am going to see my gynecologist tomorrow because of some infection around one of the incision sites.
Basically, I've been sleeping all day with 2-4 hour waking times in between my long naps. It's so great to have the ratties and the cats here, though. And being in my own bed and room and recliner is great.
Thanks to everyone for your support and for all the cards I've been getting. I wish I could give you all a bazillion dollars!

Becca

August 6th, 2008

First of all, forgive me if this email has tons of typos or badly phrased sentences. I'm really super out of it today.
So the last couple of days my tummy has been feeling worse and then I had this drainage out of one of my incisions so we went to see the gynecologist today. She looked at the incision and said to try and antibiotic cream and to watch and make sure the redness didn't spread.
We talked about maybe doing some physical therapy down the line since I can't seem to stay awake long enough to do much exercising. We also talked about going to see a pain management specialist since right now the doctors are so limited in what they can give me (I can't have anything that contains aspirin, ibuprofen, or too much Tylenol).
I gave them a urine sample since there are some issues there and I also got a few blood tests done. We're going to be calling UNMC to see if we can see my liver doctor, Dr. Mukherjee, sooner rather than later and ask him about all these things and get his opinion. Also, since my clotting factor is so weird, I've been having around 7 nose bleeds a day and if my lip cracks and starts to bleed (which is does almost everyday) it take 3-4 hours for the bleeding to stop. This clotting factor thing could be related to the liver, but we're not sure. Anyway, we gotta get the opinions of a lot of different specialists because I'm such a complicated case.
Today, I'm just lying around, feeling so tired and immovable that it feels like I don't really exist. Public outings really take it out of me. The rats and Velvet are keeping me company, though and I'm trying to eat a little.

Becca